Uncertainty surrounding COVID-19 regulations has seen the now annual community fun run event abandoned and replaced with a new fundraiser where you set yourself a personal challenge.
All proceeds will still be donated to Cupid’s Undie Run, which aims to raise funding and awareness for the Children’s Tumour Foundation and families going through a Neurofibromatosis diagnosis.
The initiative was started in Deniliquin by Blighty couple Adam and Meg Marshall, whose son Eddie suffers from Neurofibromatosis type 1 (NF1).
NF is a serious, incurable and unpredictable genetic condition that can cause tumours to grow on any nerve cell throughout the body, including the brain and spinal cord. Eddie was diagnosed with the condition in 2018, aged just three.
The challenges can take place at any time between February 14 and 28.
‘‘Due to the Coronavirus pandemic there will be no formal activities, but locals can still get involved with plenty of activities that can be done with your friends to still support the cause,’’ Mrs Marshall said
‘‘I am personally organising a cocktail night with a group of friends who have always helped me with the Undie Run days. as a thank you event and fundraiser for this years Cupid’s Undie Run.
‘‘If anyone else wants to do something similar, the Undie Run website has plenty of challenges and ideas, and I have also registered so people can make direct donations to ‘Eddie’s Village’ if they want to.’’
Mrs Marshall said 2020 was a tough year for Eddie, who was impacted by Coronavirus more than most local children.
‘‘Eddie is tracking along really well in the scheme of things,’’ she said.
‘‘Last year was really disjointed for him from a schooling perspective.
‘‘Lots of children missed out on school, but him more so than anyone because he had to isolate for two weeks after every appointment in Melbourne.
‘‘He is also living in a fair bit of pain at the moment, which we are trying to sort out with a neurologist. But they have no explanation as to why.
‘‘But that is an NF thing, they live in pain which is disrupting his day to day life at the moment.
‘‘We want to try and get him as comfortable as possible and also to be able to manage it mentally himself going forward, seeing a psychologist to work on that.’’
To donate directly to ‘Eddie’s Village’ visit www.cupidsundierun.com.au/my-fundraising/1267/eddies-village.
To find out more about how you can participate in the 2021 Cupid’s Undie Run, visit www.cupidsundierun.com.au.
‘‘We just hope the community will continue being as supportive as they have been,’’ Mrs Marshall said.
‘‘Every little bit of helps, and is certainly appreciated by the families impacted by NF.’’
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